The official blog of the Lung Institute.
By now, you’ve probably done some research on your condition and what to expect. It might also be helpful for you to learn about common misconceptions about the care needed for chronic lung disease patients–your family may be misinformed about the realities of living with a degenerative lung condition. Having an idea of how to explain your lung disease to loved ones will help lower the anxiety level of everyone involved.
Determining What Your Loved Ones Know
Before bringing up the subject of your medical prognosis, make sure your loved ones have a clear understanding of your health status. The first step in this process is understanding your COPD prognosis so that you can accurately explain how the disease will likely progresses over time.
People handle difficult information in different ways. If you’re worried that family members will not be accepting or understanding of your prognosis, it might be beneficial to have your physician, clergy or a trusted friend present, or even to speak with them on your behalf.
Your Goals for the Future, and Theirs
Your greatest concern as a patient might be to live without pain, or to stay at home or simply not to be a burden to your loved ones. Ask your family what their concerns are when they consider the coming weeks, months, and years. Explain your concerns for them, as well as for yourself. Let them know you want to ensure that everyone’s needs are met.
Take the Initiative
It’s up to you to express your wishes. Sometimes, out of concern for your feelings, your family or loved ones might be reluctant to raise the issue of further care for you. If you’ve been diagnosed with a progressive lung disease, and are looking for a treatment option that goes beyond supplemental oxygen and medication, the Lung Institute might be able to help. If you or someone you love would like know more about cellular therapy, please contact us online or call (800) 729-3065 to speak with one of our patient care coordinators.