The official blog of the Lung Institute.
A featured series where Lung Institute employees tell their stories #WhatIsMyWhy
It is heartbreaking to hear patients tell me their stories of how they walked out of their doctor’s office feeling they had just been given a death sentence. They have been told there is nothing else that can be done to treat their chronic lung disease other than treating their symptoms with inhalers, oxygen and other things.
I want to give hope to people who have been told they have no hope.
Life Comes Full Circle
I have worked at the Lung Institute as a patient coordinator for a little more than a year. I feel life sometimes comes full circle. I started out in college to be a nurse. After a while, I realized it might not be the best fit for me. I might tend to take it too personally. I went into the corporate world and eventually wound up in sales. I called on doctors and the medical community, and I sold medical equipment to hospitals. But, I realized I wanted something more rewarding.
When this opportunity came up I thought it was the best of both worlds. The cellular therapy part really interested me because it is cutting edge medicine and it truly gives patients hope, improves lung function and overall gives patients a much better quality of life.
I learned quickly that anyone living with a chronic lung disease has a daily struggle, even a minute-by-minute struggle. We are giving the patients hope and we are giving their families hope as well.
Doctors Should Give Hope Too
I am constantly surprised that doctors do not recommend cellular treatments. I think it’s sad that some doctors just won’t take the time to research what is being done with cellular therapy and find out how successful it is. Still, others in the medical field are hesitant to recommend treatment because not enough has been published in medical journals. Fortunately, we have a lot of patients who go against their doctor’s advice and choose to have the treatment. Afterward, they say it was the best thing they ever did.
A physician’s responsibility is to do all they can for a patient and I think they fall short in not telling patients about the availability of our services.
I believe some of that resistance for their patients is a concern about insurance coverage. It takes time for insurance companies to do their due diligence, cost analysis and research. It took 10 years before chemotherapy was covered.
Success Can Lead to Success
I keep a folder with patient success stories. It is very helpful to share a patient’s story with another potential patient. I know if I were a patient, I would like to hear from others and what success they had.
It all comes back to my nursing background. I have always had a nurturing side. And it just comes very naturally to me. I have had patients tell me I have a very nurturing way about me. It’s genuine. It’s just who I am.